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Latest News

Launch of Kinship Care DVD is On 15 June we launched our Health Matters for Children and Young People in Kinship Care DVD at an event in Edinburgh. The DVD features kinship carers discussing issues affecting the health outcomes of the children in their care. There are also interviews with practitioners who discuss sources of help. The DVD is available below, or contact us for a copy.  

 

  

 

 

To read our Spring 2017 newsletter click here

ASCS has just developed a new resource to help professionals and others to engage with their stakeholders a Guide to Engagement with Families - Participation in Practice. Click here to read
 
ASCS currently has a vacancy for a Development Officer Post - closing date 30 January 2017.  For further information click here
December 2016 - Our Winter 2016 Newsletter is now available.  Click here to read. 
November 2016 - ASCS is delighted to collaborate with NHS Education Scotland to deliver training to dental health staff on understanding children's play. 
September 2016 - Our Annual Review and Impact Report 2015-16 is now available.  click here to read. 
July 2016 - We are delighted to welcome Shona Agnew to our staff team.  Shona will carry out a development role working to promote our work to a range of groups.
June 2016 - Our Summer Newsletter is now available. News about the results of our parent/carer survey of children's anaesthetic experience; oral health provision ion ASL settings; Early Years Collaborative etc.  click here to read
May 2016 -

Please click here for information on a current vacancy for a 20 hr pw Development Officer post

ASCS was delighted to co-host on 4 May with fSDC (for Scotland's Disabled Children) and Children in Scotland, a participation seminar for parents and carers in West Lothian.  Another event will be held in Edinburgh in partnership with RCPCH in Edinburgh on 20 May. Contact us for further info.
 
April 2016 - Our 3rd self management project for children and young people with long term conditions got underway in April.  For further information please get in touch with Simita our Project Officer. 
March 2016Our Special Smiles project team was delighted to welcome Chief Dental Officer (CDO) Margie Taylor to  Castleview School in Stirling on March 15th.  The children and staff eagerly showed the CDO how they are learning more about healthy eating, oral health care, and reducing anxiety about dental visits by using the dental play resources in the classroom.

 

 

 

 

 
February 2016Glasgow Soroptimists and Stagecoach Theatre Arts Glasgow have raised £5,000 following two performances by Stagecoach students. Dr Ann Finch, President of Soroptimist International Glasgow City Club presented a cheque for £2,500 to  Action for Sick Children Scotland and Save the Children. Ann commented ‘I am delighted that the monies raised by the students of Stagecoach Theatre Arts Glasgow will be used to support less fortunate children in Scotland and worldwide.’   Soroptimist International is a worldwide voluntary organisation for women which works to educate, empower and enable opportunities for women and girls. It has consultative status at the United Nations and is a recognised Non-Governmental Organisation representing women from all over the world.

        Soroptimist International - www.soroptimistinternational.org

United Nations - www.un.org

Stagecoach Theatre Arts Glasgow - www.stagecoach.co.uk/glasgow

 

 

From left: Dr. Ann Finch, President SI Glasgow City

and Dagmar Kerr, Action for Sick Children Scotland

with Stagecoach Glasgow students.

 

 

February 2016. Survey for Parents and Carers whose children have had an anaesthetic in NHS Scottish Hospitals
 We are seeking the views of Parents and Carers, whose children have had an anaesthetic in a Scottish NHS hospital during the last 3 years. We want to know about your experience in general.  We have devised a short survey which should take no more than ten minutes to complete.  It can be accessed on the following link and submitted online
 
 
 
We would be most grateful if you could help us by answering this survey.  Your views and experiences are very important and the information provided will be used to help our work towards getting the best experience for children and young people in hospital. 
The survey is open until Monday 28 March so please do reply before then.
 
If you would prefer to be sent a copy of the survey please call us on 0131 553 6553 or email enquiries@ascscotland.org.uk with your contact details. Thank you so much for your help.
 
 January 2016 -   ASCS is delighted that its core funding application to the Children Young People and Families Early Intervention Fund has been successful.  A great start to 2016!
Click here to read our Winter 2015-16 Newsletter.  This issue contains our Manifesto for the Scottish Government, Members of Scottish Parliament and those responsible for the formulation of healthcare policy.  It also includes an excellent example of good practice from NHS Ayrshire & Arran in relation to caring for children and young people in non paediatric environments.
 
For further information about our campaigning activity and to read the Manifesto click here. 
 
November 2015 - Our Autumn Newsletter contains lots of interesting articles and information including innovative practice at the MRO Dept at the Royal Hospital for Children; A Teacher's Experience of Special Smiles; our Lothian Self Management Programme for children and young people with long term conditions.  Click here to read
October 2015 - Our Annual Review and Impact Report 2014-15 is now published.  Click here to read about how we have helped in the last year.
September 2015 - Ready, Steady, Go! It's National Play in Hospital Week, September 28-October 4, 2015.  The theme this year is 40 Years of Passion for Play. ASCS has long championed the Right for children and young people to have appropriate and specialised play services and activities available in hospital and other healthcare settings (EACH Charter point 7).  Please visit www.nahps.org.uk  to find out more about the importance of play when children and young people are unwell.
Aug 15 - We're delighted to announce that this month we start work on a new self management project for children and young people with long term conditions, working closely with the Royal Hospital for Sick Children Edinburgh.  More info on this exciting project is available here 
July 15 - Action for Sick Children Scotland wins National Oral Health Promotion Group Prize for Special Smiles Project in NHS Lanarkshire and was finalist in International Paediatric Dentistry Competition.  Special Smiles is funded through the Scottish Government Third Sector Early Years Intervention fund. click here for more information.
 Project Co-ordinator Catherine Nelson and Dr Albert Yeung, NHS Lanarkshire at IAPD event. 
June 15 - We have a job vacancy for a project officer working in Lothian delivering workshops to children and young people with long term conditions.  Deadline 25 June.  click for application pack
April 2015 - Click here for our Spring 2015 Newsletter.   
March 2015 - Healthy food/nutrition to be provided for children in hospital is one of our current campaigning priorities.   Click here for our Report on Food for Children in Hospital 2015. This Report contains findings of our surveys on parents/carer experience of mealtimes and the food provided for their children in hospital and the findings of our Survey of NHS Boards Dietetic and Catering Leads and CEOs.

January 2015 - A happy and health New Year to all.  Let's make 2015 a great year for all Scotland's children and young people?
December 2014 - Winter 2014 Newsletter - click here to read about our Conference  and latest news on Education Guidance for children and young people absent from school due to Illness.
Person Centred Care for Children and Young People, Myth or Reality?
Friday 14 November 2014, Royal College of Physicians of Edinburgh
For further information about our latest conference click on latest events option in menu
 
October 2014 - To read our 2013-14 Annual Review and Impact Report click here
 
July 2014 - Hospital Food for Children – We Need Your Help
We're campaigning for access to good, nutritious food for children when they are in hospital and for them to have the best possible mealtime experience, but we know that the reality can sometimes fall far short of that.  We need your help. If your child has been in hospital in the last 3 years and you have something you'd like to say about the meals provided or mealtime experiences they've had, please fill in our survey.  We’re extending it until 22nd August . We would like to hear from you wherever your child was treated. Most responses so far have been about hospital stays in Edinburgh and Glasgow so we are also hoping to hear about hospital stays in other areas of Scotland. Thanks to those who have already completed this.  Please share.
 
June 2014 - Survey for Parents and Carers on Food Provision and Mealtime Experience for Children in NHS Scottish Hospitals  We are seeking the views of Parents and Carers, whose children have had one or more stays in a Scottish NHS hospital during the last 3 years. We want to know about the food provided to the children and about the child’s meal time experience in general.  We have devised a short survey which should only take about ten minutes to complete.  It can be accessed on the following link and submitted online
 
We would be most grateful if you could help us by answering this survey.  Your views and experiences are very important and the information provided will be used to help our work towards getting the best possible nutrition and meal time experience for children and young people in hospital. 

May 2014 -  We are currently recruiting for a Project Officer for our Special Smiles Dental Project.  If you think you might be interested in working on this fantastic project which helps children with additional support needs to look after their teeth and cope with dental anxiety through the use of our dental play resources - please read advert and application pack here.

April 2014 - Read our Spring Newsletter including  articles on transition to adult healthcare; the Royal Hospital for Sick Teddies! Influencing Child Health Policy Seminar amongst others.

 

March 2014 -  ASCS was one several organisations called to give evidence on 4th March to the Scottish Parliament Health & Sport Committee on the transition from paediatric to adult health services. Click here to read our written submission. In the roundtable discussion MSPs heard of the lack of coordination, planning, and support that restricts young people from achieving their outcomes in adulthood. Contributors  called for a combined systematic approach between Health, Education and Social Care; emphasising the need for critical support to enable young people to move between services smoothly.  Transcript of the proceedings can be read on the following link.

 http://www.scottish.parliament.uk/parliamentarybusiness/28862.aspx?r=8983&mode=pdf

February 2014 - DATE FOR YOUR DIARY - ASCS CONFERENCE 14TH NOVEMBER 2014

at the Royal College of Physicians Edinburgh, 9 Queen Street Edinburgh. Further details and Programme will be sent out soon.   

 

January 2014 -   The Staff and Executive Committee at Action for Sick Children Scotland wishes all of our friends and colleagues a Happy New Year. 

 

December 2013 - WEST LOTHIAN family workshops: January 25, February 1, February 8 and March 1. Developing self-management skills and awareness for children (age 8-12) living with a long term health condition and their parents or carers.  These fun and free workshops will be held at Bathgate Partnership Centre, Lindsay House, South Bridge Street, Bathgate EH48 1TS.  Contact Project Officer, Amy Joss on phone/text 07712542849 or email amy.joss@virginmedia.com for more information or to reserve your place!

November 2013 - Click here to read our Autumn/Winter Newsletter which contains news on our Parental Access and Family Facilities Report 2012-13 (click here) and the Scottish Parliament event on 9th October to discuss findings.  Other news incudes Person Centred Care for Children and Young People in Scotland.  

October 2013 - ASCS's Parental Access and Family Facilities Survey 2012-13 Report  was presented at a Reception at Scottish Parliament hosted by Alison McInnes MSP on 9th October.  The  Report describes the findings arising from 66 NHS wards.  A report on the event will feature in our Autumn Newsletter.  Click here to read the Full Report.

 September 2013 - An information session for West Lothian parents and carers of children with long term health conditions:  Thursday, September 12, 2013 from 6:30-8:00 pm, Armadale Community Centre, North Street, Armadale EH48 3QB.  For more information or to let us know you are coming, please contact the Project Officer, Amy Joss on phone/text 07712542849 or email amy.joss@virginmedia.com.

September 2013We have revised and updated two useful guides for parents and carers.  Helping Children Cope with Needles and Helping Children cope with Pain

 

August 2013 - In order to gather as much information as possible, the West Lothian Child Self Management pilot project is still collecting survey responses from parents and carers of children with long term health conditions until the end of August, 2013. Please click here to take the survey: www.surveymonkey.com/s/ascspcwl

 

 May 2013 The West Lothian Child Self Management pilot project is collecting information from parents and carers of children with long term health conditions from now until mid-June. If you would like to let us know about how you and your child feel about health, illness and treatment, click here to take the survey: www.surveymonkey.com/s/ascspcwl

 
May 2013 - a little late in spreading the good news which we received in April but we are delighted to report that our applications to BIG's Third Sector Early Intervention Fund for our core activities and for our Special Smile Dental Project have been successful. Funding is available until March 2015.
 
April 2013  click here to read our Spring 2013 Newsletter for articles on Administration of Medicines in Schools; Education for Sick Children; new self management project in West Lothian amongst others.
 
March 2013  The 2012 Evaluation of our Special Smiles Dental Project  
is now available. Click here to read the Report on our Publications Page.             
Feedback from children and teachers in 17 additional support for learning
schools (and parents/carers) has been really fantastic and shows the
huge benefits our Inspiring Scotland Early Years Early Intervention
Project is having. 
 
We're delighted to let you know that we are now on Facebook.  Please  go to http://www.facebook.com/pages/Action-for-Sick-Children-Scotland/335036309873235 to reach our Facebook page.  If you 'like' our page you will receive regular news updates. You can also access it via the Facebook button on the home page of this website. 

 February 2013   It's hard to believe that we're in February already. ASCS has had a busy start to the year and we are delighted to let you know about a new pilot project that started on 1 February.  The West Lothian Child Self Management pilot project will be working over the next year on supporting children aged 8-12 with chronic conditions to learn to self manage their condition.  The pilot will also support parents to help their child to self manage.  A dedicated page for this project will soon be available on this website with further information. 

We will also be launching our Facebook page this month.  We hope that you will like it!

Our Special Smiles Dental Project funded by Inspiring Scotland Early Years Action Fund has received a funding extension until end June 2013 which means we can continue to support schools in Glasgow and roll out to new ASL schools in South Lanarkshire. 

December 2012  The Executive Committee and Staff at Action for Sick Children Scotland wish you a Happy Festive season and Best Wishes for 2013. 

September 2012 - Our Annual Review and Impact Report for the year ended March 2012 is now available.  Click here to read.

August 2012 - We've updated our Children's Booklist which includes lots of new books which can help families prepare their children for hospital or medical treatment.  Click to access

July 2012 - Our Stay Well Lanarkshire Project has produced a new lealfet called Talking About My Health Condition aimed at young people with long term health conditions and healthcare and education professionals who work with them.   The Project has also produced a USB wristband which is available for young people with chronic conditions.

We're delighted that Inspiring Scotland's Early Years Early Action Funding has been extended until 31 March 2013 which means that our Special Smiles dental project can continue to work in special needs schools in Glasgow as well as rolling out to 12 schools in Ayrshire. 

April 2012 - We are delighted to have started a new Seasons for Growth Programme for Kinship Carers in Clackmannanshire.  The first session took place end of April and will run on consecutive weeks throughout May. 

March 2012 - Spring 2012 Newsletter now available click here to read

February 2012 - Our Special Smiles Dental Project was pleased to join together with other Glasgow based Inspiring Scotland funded ventures to showcase our work at the voluntary sector 'Gathering' held at the SECC on 29 February. 

 January 2012 - A Happy New Year to all of you from all of us at ASC(S).  Let's hope it is a good one for all of us working for and with children, young people and their families!

 The year opened on a sad note for us at ASC(S) on hearing of the death on 2 January of Dr Peg Belson MBE who was a founding member of our organisation.  Peg was in her 91st year and was active as recently as November when she attended a European Association for the Welfare of Children (EACH) meeting in Vienna.  Peg was a real pioneer and will be sadly missed by all of us who knew her.  On the occasion of her 90th birthday, Peg received the inaugural University of Sydney's UK Alumni Award for Lifetime Achievement. click here to read the text which was published on that occasion and which describes her many accomplishments. 

 December 2011 -  Stay Well Lanarkshire's next  self management programme for young people living with chronic illness will  take place from 11 am to 4.00 pm on 28 January 2012, 18 February and 10 March at a Coatbridge venue.  Please call office on 0131 553 6553 for further details. 

November 2011 - Special Smiles Project Co-ordinator Catherine Nelson gave a presentation to guests at the Scottish Parliament on 31 November about the project's benefits for children with additional and complex support needs.  The event was hosted by Pfizer UK whose foundation was one of the Project funders.

October 2011 - Having a say in shaping and delivering child healthcare services –  We are building up a core group of families – parents, carers, children and young people, including family support groups – interested in having their views heard by policy makers in order to shape health care services in Scotland. There are a number of ways to get involved from simply receiving information to taking part in focus groups or conferences. If you would like to participate, please read the Cover Letter and complete our Family Participation Questionnaire or to find out more contact Anne Wilson on Tel: 0131 553 6553 or email: a.wilson@ascscotland.org.uk 

October 2011 - Go to our publications page to read our Autumn 2011 newsletter which contains amongst other news items, up-todate information on the progress of our campaign for equitable and appropriate access to education for all children and young people absent from school due to illness.

September 2011 - We are delighted that our Special Smiles Dental Project is one of 24 national charitable projects chosen by Inspiring Scotland to join its Early Years Early Action  Portfolio. This will enable us to continue our work in 'special needs' schools in Glasgow until Spetember 2012.  Fantastic news!

August -Sept 2011:

Action for Sick Children (Scotland) as an organisation respresenting the voices of parents and carers and partner to CEN ( the National Managed Clinical Network for Children with Exceptional Healthcare Needs) calls on all parents and carers to sign up to their free national conference:  

July 2011:  Stay Well Lanarkshire's next  self management programme for young people living with chronic illness will  take place from 11 am to 4.00 pm on Saturday 3 September, Saturday 1 October, and Saturday 5 November at a Coatbridge venue.  Please call office on 0131 553 6553 for further details. 

April 2011:  Stay Well Lanarkshire's next  self management programme for young people living with chronic illness will  take place from 11 am to 3.30 pm on 30 April, 28 May and 25 June at a Hamilton venue.  Please call office on 0131 553 6553 for further details. 

March 2011

Spring 2011 Newsletter now available click here

Their Health Matters: Children and young people in and leaving care - Project Report now available. Please visit project page to read.

Community Specialist Play Pilot Project Report now available.  Go to project page to read. 

February 2011:  Workshop notes for use when showing our Young Parents DVD to groups is now available to download.  click here

ASC(S) Education petition further considered by Petitions Committee on 22 February. See campaigning page for further information.

January 2011: Stay Well Lanarkshire project begins next round of self management programmes in late January for young people living with chronic illness. See project page for further info.

The December/January edition of the Scottish Dental Magazine included as article about ASC(S) Special Smiles article. (Top Right of front cover for flier, Pages 6 and 33-35 for article). click on following link Scottish Dental Magazine.

 December 2010: ASC(S) has lodged a petition with the Scottish Parliament concerning the right to education for all children and young people at times of illness, regardless of where the live, their condition or whether they are being treated at hospital or in the community. Renfrew MSP Ken Macintosh has also submitted to Parliament a motion in support of our work. See campaigning page for further information.

November 2010: ASC(S) Special Smiles Project which successfully piloted dental resources for children and young people with additional support needs in Tayside will now be rolled out in selected schools in Glasgow City over the next 18 months. See project page for further information.

October 2010:Community Specialist Play pilot project in Forth Valley successfully completed. Stay Well Lanarkshire begin next series of workshops for young people with chronic conditions.

September 2010: ASC(S) conference Does EACH Child and Young Person's Health Matter? Asking the Difficult Questions on 14 September in Glasgow, challenged Scotland to fulfil its obligations under the UNCRC, to uphold the EACH Charter and keep its promises to children and young people. Conference Presentations for viewing/downloading

June 2010:Special Smiles Dental Project in Renfrewshire completed after working in 4 schools since January 2010.

May 2010: Special Smiles Dental Project highlighted during National Smile Month at Mary Russell school in Paisley

March 2010: ASC(S) toolkit to assist professionals working with looked after and accommodated children and young people with their healthcare needs launched. View toolkit on project page.

February 2010: ASC(S)'s 'Young Parents Speak Out DVD' launched in Dundee. For more information see project page.

December 2009:ASC(S) campaign EACH Child and Young Person's Health Matters to raise awareness of the healthcare needs, rights and responsibilities of sick children, young people and their families launched at a Reception at the Scottish Parliament hosted by Christine Grahame MSP, along with our manifesto which calls for changes and improvements in areas relating to child healthcare provision.

 

 

Advance Notice:  We are holding a reception at the Scottish Parliament sponsored by

Alison McInnes MSP on Wed 9 October 2013 from 6 pm – 8 pm to report on the findings of our

2012-13 Parental Access and Family Facilities Survey of NHS hospitals admitting paediatric patients

Places will be allocated on a first come first served basis.   We hope that as many people as possible will be able to attend to hear about current provision for families when their children and young people attend hospital. Get in touch if you would like to receive further information.

Survey for Parents and Carers whose children have had an anaesthetic in NHS Scottish Hospitals   We are seeking the views of Parents and Carers, whose children have had an anaesthetic in a Scottish NHS hospital during the last 3 years. We want to know about your experience in general.  We have devised a short survey which should take no more than ten minutes to complete.  It can be accessed on the following link and submitted online
 
 
We would be most grateful if you could help us by answering this survey.  Your views and experiences are very important and the information provided will be used to help our work towards getting the best experience for children and young people in hospital.  The survey is open until Monday 28 March so please do reply before then.
 
If you would prefer to be sent a copy of the survey please call us on 0131 553 6553 or email enquiries@ascscotland.org. with your contact details. Thank you so much for your help.